Sunday, September 25, 2011

An Update: Sensory Integration Disorder

I started my job three weeks ago. I'm working for a local theatre company, which is really cool. I'm on the production team as an intern. I love it, I get to work quietly all day with a small number of faces and it's not overwhelming at all. My boss thought it would be a good idea to put me on the wardrobe crew, but then realized it was too overwhelming for me, and that I would be better working behind the scenes. Typical aspie. It's cool though, I don't mind it. Realizing I can't work in an overwhelming environment is just one of the facets of discovering your personality and what you can do best, it's a part of life. I'm not upset. I'm just happy my boss was understanding and that I didn't have to pull out the "I have Asperger's" card. No, she doesn't know, but how is giving a label different from saying "I work well in quiet places" without the added misconceptions about a developmental difference?

I've been commuting into work every day by the train. It's an hour long train ride from where I live, since I'm living at home with my parents in the suburbs. Probably a good idea. The train is overwhelming, and it's long hours, but there are ways around it. I've been learning how to cope with sensory overload on the train- my iPod and earplugs are wonderful. I like having a snack with me as well.

Yesterday my neurologist diagnosed me with Sensory Integration Disorder- I'm tired all the time and cannot deal with loud noises. My family puts the TV too loud, they like to yell, fuzzy noises hurt me, and I get motion sickness very easily when in the car. I also went to Ikea a few weeks ago and had a meltdown. I don't like overwhelming settings. This is just the beginning...

Lately I've been avoiding loud places- I haven't gone to night clubs, or stayed out too long, as it's worse when I'm tired. I've essentially become a hermit. What will I do when there's another band I want to see? I'm usually able to push through concerts but I don't want to wear myself out since I'm suddenly becoming a lot more sensitive to these things.

My mom thought it would be a good idea for me to go on a swing, since I did that when I was a kid in OT, and it really helped a lot with the neurological connections in my brain. I tried that and found my body isn't built for childrens' swings (my hips are too wide). They're buying me a weighted blanket though, so hopefully that will help. I also got some new lightbulbs that are built to replicate daylight- my neurologist told me to turn them on in the morning so that I can properly wake up.

I've been doing my best to eat well and rest. I really do hope things get better. I'd like to actually have the energy to live and experience the world.


B said...

I kind of stumbled upon your blog and was wondering, where did you find a adult weighted blanket? I have aspergers and I have trouble with sensory issues, and a large weighted blanket would be awesome!

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